Hi,

Just wanting to give a quick update on Mike….

Tonight he has moved to the step down unit within the ICU. The transplant team have been happy with his numbers and progress. He is very tired and feeling pain, but doing very well considering everything he’s been through. Thank you SO much for all your messages, love, and support!! God Bless the donor and family and the transplant team for saving the Love of my Life. We will always be eternally grateful.

Love Always,
Christine, Mike, and Troy
xoxoxo

Happy New Year Everyone!

 

 

Dear Family, Friends, and Colleagues,

Sorry everyone for being so quiet the past few weeks. It has been a very difficult and tiring period of medical testing, travel, and obvious disappointment about not meeting the health requirements for the stem cell transplant procedure in Chicago. We have had an emotional roller coaster ride this past 18 months with the birth of our son Troy, the news of Mike’s diagnosis and rapidly deteriorating health, the hope and inspiration from our very successful fundraising program, and finally this most recent news that there are issues with Mike’s heart that dramatically increase his risk of not surviving the stem cell transplant. We are obviously very disappointed but at the same time we are blessed to have so many caring and loving supporters around us who have generously donated time, money, and emotional support in an effort to help us.

We have accepted this unfortunate reality now and have already begun pursuing the lung transplant option for which Mike just recently underwent the assessment to determine his eligibility. We should know in the next month or so if Mike will be a candidate, and in the interim, will be researching diligently to estimate the out of pocket costs for pre and post lung transplant surgery. The surgery itself will be covered by OHIP, however, there will be significant out of pocket expenses as well:  Travel and relocation prior to and after surgery for Mike to live several months to prepare and recover from surgery while in an immune suppressed state, a lifetime of immunosuppressant and anti-rejection drugs not covered by OHIP, medical devices and other aides to help Mike following surgery. It is also expected that Mike will go on long-term disability for a substantial, unknown period of time with limited physical ability.

This has left us in a unique position regarding the funds raised for the Help Save Mike campaign as he is no longer candidate for a stem cell transplant. Mike now must pursue a double lung transplant which also entails significant costs. We have received feedback from many of our generous supporters to use the money raised to date towards our upcoming lung transplant expenses which we now intend to do. Once we have received confirmation of Mike’s lung transplant eligibility and have determined all of the costs involved we may be in the position to return some portion of the donations raised to date. As such, we are asking you to let us know if you wish to have your pro rata portion of any excess funds returned in the coming months when we know what is left over.  If so, please reply to our website www.helpsavemike.ca using the Contact page with the amount of your donation, name and address, and who the cheque should be made payable to. We will contact you in due course with more details.

To those of you who have already told us that you would like us to keep your donation we are very touched and grateful. The family intends to place any excess funds not reimbursed into a trust fund for our son Troy.

Love always,

Mike, Christine, and Troy

Xoxoxo

Finally got some great news today….

Thank you everyone for your ongoing support!

Check out Mike’s interview that aired last night on CKWS Television.

A special thank you to reporter Paul Soucy who took the time to cover the story and help raise awareness for Mike’s cause and the disease.

Take a look at Mike’s first video blog

 

Stay tuned for more updates!